Saving Faces and NFORC Head and Neck Patient and Public Advisory Group
We need help from patients and members of the public to ensure that we are moving in the right direction.
Patient and Public Involvement (PPI) is “research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.” – The National Institute for Health Research (NIHR)
PPI is the active involvement of patients, carers and/or the public in research in which they contribute at all stages of the research process as advisers.
The involvement of patients and the public provides a unique and meaningful insight that is essential to the improvement of treatments and quality of life for patients living with a head and neck condition. It ensures that research is important, relevant, ethical and participant friendly. An active PPI group is also an important factor in the review process of applying for research grants from the UK’s major funding bodies. This is especially true for facial research, which is hugely underfunded.
Saving Faces and the National Facial, Oral and Oculoplastic Research Centre (NFORC) conducts high impact national and international research through collaborative work with surgeons at multiple institutions across the UK and globally, and most importantly with patients, carers and the public.
We are pleased to announce that a Saving Faces and NFORC Head and Neck Patient and Public Advisory Group has been set up to encourage patients and the public to get involved in our upcoming research projects throughout all stages of the research cycle. Saving Faces and NFORC values everyone’s opinions and the involvement of patients and the public will help us lead to higher quality research that is more focused on what matters most for patients living with a head and neck condition.
Our advisory group will be comprised of patients, carers and members of the public who would like to have the opportunity to contribute in the development of our research ideas and projects.
We are looking to include individuals from all kinds of backgrounds to be a part of this group, as we want this group to represent the general public. Members could be patients who have the same condition as the group of patients that we would like to study. By getting the opinions of patients, we will have a better understanding of what matters most to patients.
Members could also be a school student, teacher, parent, health care provider, in retirement and more. Please note that members DO NOT need to have experience in research.
If you would like to volunteer and contribute your knowledge and experiences to our research and improve the treatment for patients living with a head and neck condition, please see the role specification here.
Speak to the research team
We are always on the lookout for new people to join the our Head and Neck Patient and Public Advisory Group so there is no deadline to register your interest.
If you would like more information or are interested in joining our advisory group, please contact our research team on:
Telephone: 020 8223 8049
If you are interested in finding out more about our research projects, visit our NFORC website at https://nforc.co.uk